KEF Frequently asked questions

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Epilepsy is the fourth most common neurological disorder in the world. If you have epilepsy, surges of electrical activity in your brain can cause recurring seizures. We can help you understand everything you need to know about epilepsy and what you can do about it.

Causes of epilepsy are different for each person, and some people have no identifiable cause. In others, doctors can trace epilepsy directly to genetics, brain trauma, autoimmune disorders, metabolic issues, or infectious diseases. Each cause has different signs, diagnoses, and treatment options.

 

Knowing you’re having a seizure and diagnosing the type of seizure or epilepsy syndrome can be difficult. Even if it’s unclear whether you’ve had a seizure, you should see a doctor if you suspect, or people tell you, that there are times when you aren’t aware of what you're doing.

The doctor would try to figure out if you had a seizure and what caused it. If another medical condition, like diabetes, caused your seizure, you will need treatment for that condition. If your doctor thinks you have epilepsy, they will probably order some tests and prescribe medicine to keep you from having more seizures.

Although there is no known cure for epilepsy, developments in treatment have made it possible for most people to achieve seizure control. The first treatment step is usually to find the right medicine or Anti-Epileptic Drug (AED). If seizures continue to happen, other treatments like devices, dietary therapies, or surgery can help control seizures.

People with epilepsy may experience health problems other than seizures. These problems could relate to the seizures, or they could be due to whatever is causing the epilepsy. For example, you may experience mood problems, changes related to seizure timing or side effects of medicines. Others may experience issues with sleeping, thinking and memory, or socializing with others. In rare instances, early death or SUDEP (Sudden Unexpected Death in Epilepsy) can occur.

Recognizing when any of these challenges happen can help you and your health care team figure out how to treat them. 

Tracking & Managing Seizures

Living with epilepsy is more than just knowing your type of seizures or what medicine to take. You need to learn how to manage and respond to seizures in a variety of situations. The best way to manage your seizures is through the right preparation, the right treatment, and teamwork. This includes factors such as:

  • Your confidence in managing your seizures
  • The quality of care and communication with your healthcare team
  • Your support from your family and friends
  • Whether your team works together to set realistic goals and plans
  • Your mood and whether you feel “in control”

It’s important to stay actively involved and take charge of your treatment as much as possible. Learn how to track seizures, manage your seizure triggers, and work with your healthcare team to take control of your seizures and epilepsy.

Seizure Preparedness and Safety

Safety is always the biggest concern when it comes to seizures. Staying safe means you need to know how seizures can affect day-to-day activities and other health related issues, such as:

  • Driving - laws and restrictions
  • Water safety - swimming and bathing
  • Fire safety – cooking and fireplaces
  • Home safety – sharp corners and carpets
  • Heights – ladders and stairs
  • Recreation – sports and outdoors
  • Childcare
  • Medication side effects
  • Bone health
  • Birth control

Whether you’re a person with epilepsy or a caregiver, plan ahead for what you and your family should do during a seizure. This might mean taking a training, creating a Seizure Action Plan, or even practicing seizure drills. Having the right plan in place helps everyone stay calm and prevent emergencies.

Seizure First Aid and Recognition

Feeling helpless watching someone have a seizure is difficult—whether it’s a loved one, friend, or even a stranger. Our training and resources can teach you how to recognize and respond to seizures safely.

While there are many different types of seizures, during many of them a person may be unaware of what is going on or lose consciousness. A person could get hurt during a seizure or a seizure could last too long, or the seizure could cluster. Knowing what to do when someone has a seizure can make a difference and save a life.

Lifestyle & Independent Living

Many aspects of epilepsy can affect your lifestyle and independence, including work, school, travel, and transportation. Both your diagnosis and your environment have an impact. This includes things like:

  • Seizure type, severity, or frequency
  • After effects or postictal symptoms of a seizure
  • Side effects of medications and treatments
  • Other neurological and developmental challenges
  • Available resources and support, including the area you live in
  • Cost of living and financial stability

But just because epilepsy has its challenges, doesn’t mean that independent living is impossible. Some people may live on their own, alone or with immediate families. Others may need a more structured or supervised living arrangement.

Epilepsy for Parents and Caregivers

Many parents, family and caregivers have similar concerns with the care they give to people with epilepsy. When the person you care for is a child, these concerns become more difficult and more important to address.

Whether you’re the parent or the caretaker of a child with epilepsy, you’ll have many questions and concerns.

Epilepsy affects people at different ages and in different ways. For some, it will be easily controlled with medication and outgrown after a few years. For others, it may be a lifelong challenge affecting many areas of life. We’ll help you find information about seizures and epilepsy in youth of all ages, from newborns to the teenage years. Some information is unique to specific ages, while others are common for all children with epilepsy.